WE WANT YOUR FEEDBACK
We are providing a private and free access to the early version of the NuMe App. It is currently being customized for patients with Myositis, Cystic Fibrosis, Multiple System Atrophy, Progressive Supranuclear Palsy, Peroxisomal Disorders and Ovarian Cancer.
Please take our quick, 7 questions survey and register with your email to receive an Apple TestFlight invitation to install the NuMe App.
or register only here
Your health data is important for you the patients, and for your caregivers.
At Portable Genomics we are working to bring you a digital solution to facilitate this data collection on a day-to-day basis.
With our App you collect and gather all of this data in a single place, controlled by you. You are the one to make sense of it, and to monitor all the different aspects of your health care. Of great importance is that each member of your medical team know what is happening with the other. Our app makes it easy for you to share your medical data with them too, if you so choose.
It uses pre-defined data collection modules of information that are important to your specific condition. In addition, you can customize this app yourself with any data you think is important for you. Data you collect remains on your phone and your personal cloud only. It is completely private and secured.
Your Personal Health Data is important for accelerating research and drug development.
Scientists, researchers from from academics to the industry have never had as much access to information that you, the patient, can provide them today.
Being part of this new process of Precision Medicine that requires sharing your data is key for the discovery of new and personalized treatments. It is a new, exciting opportunity for you to be part of this process as partners, not only as patients anymore. Now you have the opportunity to have more control, knowledge, and a say in your own health care.
With the Portable Genomics App you can share your data more effectively. You mention your willingness to share in the app. Your are notified with sharing project opportunities. You decide to participate or not, you keep your data control. And there is no limit to how often you can help.
The Personal Health Data you have and you collect, is a very valuable asset.
You pay high premiums to medical practitioners, therapists, insurance companies, pharmacies, and drugs companies. Your healthcare needs are very complex and you are working hard to collect data day after day to build your own health story.
Your data is a very important, valuable asset in many ways. When it comes to sharing your personal information with a for-profit organization, you need to be considered as a partner and be compensated for the value of your data and for your work. The health industry is making billions of dollars from your data, this is no mystery.
At Portable Genomics we have a different business model. We get patients compensated for their data. Every time there is an opportunity to share your data you make the decision if you want to participate.
By having all your medical data in one place you will be able to create a digital trail of your medical information that will be available to everyone involved in your health care.
NuMe facilitates the collection and storage of your genomics, medical and lifestyle data on your own device which you can carry with you right on your iPhone (Android coming soon.)
Progressively we will add intelligent dashboards directly into NuMe, to provide you more insight from the data you monitor.
NuMe encrypts and stores your data on your mobile device or private cloud, preserving your ownership and privacy. There are 5 levels of security to protect your data.
Decide if and with whom you are willing to share your private information. This could be your family, caregivers, medical providers, non-profit or for profit organizations. Your choice.
If you decide to share your data for commercial use (i.e. with pharmaceutical industry) you will be paid. After you have confirmed your willingness to share your personal data, you will receive a clearly written agreement of payment and it will be submitted to you for your acceptance or refusal.
Portable Genomics platform was developed with the participation of the San Diego Cystic Fibrosis community, doctors, researchers and patients.
We are now looking forward partnering with CF patient groups all over the world.
Chronic diseases such as Cystic Fibrosis (CF) require long-term medical treatments and the constant monitoring of the patient’s current health status. It is a difficult challenge for both the patient and the attending physician to monitor and keep track of changes in the large and diverse amount of relevant information that can be generated.
There exists an immediate need for a more efficient health data logging and management system that enables the recording and retrieval of patient health status on a daily basis.
Our beta version includes pre-defined data modules to collect the major type of CF-related data including demographics, genetics, spirometry, microbiology, lung microbiome, treatment, nutrition, supplements, mood and hospitalization.
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8840 Costa Verde Blvd.
San Diego, CA 92122
+1 858 405 0498